When I tell people that I work in a hospice
I often get the response, “Oh, that must be so depressing”
and actually the answer is that it is never depressing.
Sometimes, working in hospice care can be sad
but what offsets that is
the feeling that you can make a real difference
So hospices aren’t what they used to be
the focus has moved from being at the end of life
to being about improving quality of life
One of my patient’s family members said that
she felt it almost like a life-affirming place and full of hope
which she hadn’t expected to have that feeling.
You don’t have to be miserable
it doesn’t have to be doom and gloom.
It can be quite humorous really, you know
你可能觉得不可思议 但 有何不可呢
you’re a bit shocked but, why not,
so they enjoy the life they’ve got.
It’s emotionally challenging
but on the other hand it’s also rewarding.
The work can be tough
as it can be in all health care environments
but we really recognise that and name it.
As a staff member you feel safe,
you feel supported and cared for
and it’s a nice environment of air
I think nurses have got a great role in palliative care,
I think we can work autonomously
but we can also work as part of a really good multi-professional team.
I feel that I always work no matter what the role was,
我和医生 理疗专家 社会工作者们
on an equal level with doctors, physios,
social workers, you name it.
I think there’s great respect.
It’s a good feeling that you get at work.
I think something that’s missing in a lot of hospitals these days
is the old fashioned team that you used to have.
Because our on-call intensity is slightly less.
We have the same doctors on more or less for the whole week
and that develops a real sense of camaraderie.
You’re challenged but in a good way.
In hospice they offer loads of opportunity
尤其是培训 课程 还有支持
especially training, courses, and supports
Coming from a district nurse background and into hospice nursing
I had loads and loads of support,
it wasn’t just coming in and then leaving me on my own.
There was support right from the start up to where I am.
You know the biggest thing for me is I am able to spend time
you know, with patients, and quality time.
For me, it’s literally got everything, and
in terms of the pharmacology side of clinical care,
huge opportunities for research,
opportunities to provide truly holistic care
Hospices are real places of innovation and I think
that’s because we are only here to serve our local community,
so we learn very quickly what our communities need
and because we are not part of a huge machine
we can react quite quickly to the needs of our communities.
So we’ve got access to complementary therapies and counselling
that are just dedicated to these patients,
so that’s quite a good resource to have.
There’s loads of different stuff going on
比如物理疗法 护理 社会工作
from physiotherapy, nursing care, social work,
福利保障 咨询 医疗保健等等
welfare support, advice, medical care.
I feel like I’m on the Generation Game.
Frequently in health care we talk about multi-disciplinary care
but really in hospice that is truly lived in every element
of the support that we provide for patients and their families.
You actually get to walk the patient’s journey with them;
you know this is what they really wanted.
It gives me job satisfaction that I’ve done my job well.
I think that it’s a privilege,
because in the short time of their life you are part of it.
I’ve been a nurse for 35 years now
and this is the best job I’ve ever done.