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这种罕见的疾病会让你变成石头

This Rare Syndrome Essentially Turns You To Stone

大家好 欢迎来到Life Noggin
Hey there and welcome to Life Noggin.
这是一只漂亮的蝴蝶 然后变成了龙?
It’s a beautiful butterfly, and now it’s a dragon!?
哇!
Wow!
人体真的很结实
The human body is pretty resistant.
它不仅长得很快
Not only is it pretty good at growing,
而且在有割伤、淤青甚至骨折时
but if you get a cut, a bruise, or even break a bone,
身体往往还能自我修复
your body usually has a way of repairingitself.
然而有时 这种确保你健康的机制可能突变
But sometimes, the same mechanisms
造成身体或多或少的
that keep you healthy can mutate and cause your body
不正常生长
to grow and develop more or less than it wouldnormally.
想象一下 某天
Imagine that one day,
你发现胸腔里有个肿块 然后 尽管照了X光
you find a huge lump on your ribcage, and, even after getting it x-rayed,
你仍然不清楚是怎么了
you still don’t know what’s goingon.
最后你才发现是一种罕见的遗传病导致
Eventually you find out that you have a rare genetic disorder
骨头修复时过量增长
where your body becomes more and more immobile
身体变得越来越僵硬
due to a dehabillitaing amount of bone growth,
所以你只有通过电子游戏来消遣 逃避现实
to the point where you relish the escape
因为那是唯一不会让你感到
of video games since it’s one of the only activities
与世隔绝的活动了
where you don’t feel left out.
好吧 那就是丹尼尔.威廉姆斯的生活
Well that’s the life of Daniel Williams,
他是一名来自德克萨斯州休斯顿市的11岁男孩
an 11-year old boy living in Houston, Texas.
事情演变成这样
And all of this is happening
是因为丹尼尔得了人们说的“石人综合症”
because Daniel has what’s known as “ stone man syndrome ”.
石人综合症 官方上更多称为FOP
Stone man syndrome, also known more officially as FOP,
它是一种肌肉的紊乱
is a disorder where tissue from your muscles,
肌腱和韧带都逐渐被骨头取代
tendons, and ligaments are graduallyreplaced by bone.
这就导致了骨骼外的骨头化
This causes bone to form outside of your skeleton,
逐渐限制了你的活动 总的来说
which can begin to limit how much you can move around.
FOP综合症病人从童年时开始注意到
Generally, people with FOP begin to notice it when they’re kids,
症状开始在脖子和肩膀处显现
with symptoms starting in their neck and shoulders,
然后下移至身体和四肢
and then moving down their body and into their limbs.
对于丹尼尔和其它FOP综合症患者来说 确保安全就很不错了
For Daniel and other people with FOP, safety is a big deal.
由于物理创伤
That’s because physical trauma,
哪怕是对别人来说有益的手术切除骨生长
even things that would otherwise be beneficial like surgically
也会导致FOP的恶化
removing the bone growth, can cause their FOP to flare up.
这种病至今仍无法治愈
While there is still no cure,
科学家们将FOP归因于
scientists have tracked the cause for FOP back to a mutation
DNA里的一种特殊基因的变异
in a specific gene in your DNA.
因此 也许随着研究深入
So maybe with more research,
未来会有治愈的希望
there’s hope for a cure in the future!
如今 FOP已经十分罕见
Now, FOP is pretty rare,
但它不是唯一一种会导致身体过度增长的病症
but it isn’t the only condition that causes excessive growth in your body.
还有一个是多发性神经纤维瘤 又称作NF
There’s also neurofibromatosis, or Nf,
它有三种类型 但大体上都是
which has three different types, but is generally
遗传病影响了神经细胞组织
a genetic disorder that mainly affects nervecell tissues.
NF导致了肿瘤在神经内生长
It can cause tumors to grow on your nerves,
也许是良性肿瘤 但仍很危险
which may be benign, but can also be dangerous
因为压迫了神经和其他组织
as they compress your nerves and other tissues.
有时肿瘤还会癌变
Sometimes the tumors are even cancerous.
NF也没有治愈方法
There’s no cure for NF,
但是治疗能帮助控制症状
but treatments can help to control the symptoms.
与FOP不同的是
Unlike with FOP,
有时医生建议NF患者通过手术移除有危害的生长肿瘤
sometimes it’s recommended to remove any harmful growths through surgery.
有时也可以选择辐射疗法
Radiation therapy is also sometimes an option.
身体异常生长的另一种情况是
Another condition along the lines
疣状肢端角化症
of abnormal bodily growth is epidermodysplasia verruciformis,
也称EV 就是人们说的“树人综合征”
or EV, more commonly thought of as “tree man syndrome”.
这种极其罕见的皮肤病
In this extremely rare skin disease,
患者身体表层覆满了树瘤状的伤口
wart-like lesions begin to cover your body,
呈树枝状
resembling tree bark.
它的生长可能止于长成
The growths can be limited to a small cluster
由几个疣子组成的一簇 也可能直到扩大为
of only a few warts, or expand to the point
覆盖了你身体的一大片的部分
where they cover a large part of your body.
目前没有治愈方法
There’s currently no cure.
可以通过手术摘除疣子
You can remove the warts surgically,
但这只是暂时性的解决方案
though it may only be a temporary solution,
疣子随时会复发
as they can sometimes come back.
这三种情况无疑会影响生活质量
Any of these conditions can certainly affect the quality of your life.
希望某天我们能找到他们的治愈方法
Hopefully one day we can find a cure for all of them,
或者 至少找到治疗症状的
or at least find more effective ways
有效方法
to treat their symptoms.
你还想和我们聊聊什么别的病情吗
Are there any other conditions you want us to talk about?
在评论区下方给我们留言吧
Let me know in the comment section below!
你知不知道
Did you know that it’s possible
你的手也许有自己的思维?
for your hand to have a mind of it’s own! ?
很好奇想知道很多吗?
Curious to find out more?
看看这个视频!
Check out this video!
有时手会与你想做的背道而驰
Sometimes the hand will do the opposite of what you want it to do,
比如在开了冰箱门后
like closing the fridge
又关上它
door after you just opened it,
或者穿上衣服之后又脱了衣服
or trying to take off your clothes after you just put them on.
惯例来了 我是Blocko 这里是Life Noggin
As always, my name is Blocko, this has been Life Noggin,
别忘了 保持思考!
don’t forget to keep on thinking!

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视频概述

列出了三种会让你全身僵硬的疾病。

听录译者

收集自网络

翻译译者

小星星

审核员

审核员YX

视频来源

https://www.youtube.com/watch?v=eVT83mXX6xA

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