I’m allergic to my hair growing,
so when it does start to grow,
it blisters and it burns
and it’s absolute agony
So, I’d rather just keep it short
and have no hair and be pain free
than suffer for a little bit of hair
Since being diagnosed, I’ve had multiple hospital admissions,
multiple intensive care admissions.
I never know what I’m going to react to next.
I think quite a lot of people
don’t see me as disabled,
and that can be quite frustrating when I need adaptations
because I get that, “Oh, you don’t look sick”
因为我会得到这样的回答 “哦 你不像个病人”
or “you don’t look disable”.
because they can’t see if I’m in pain
they can’t see my organs swelling internally
things like that.
So that should be pretty frustrating
because I almost have to validate my disability
which I don’t feel anybody should have to do.
Towards the end of 2012, I started getting allergic reactions to fruit
so when I ate an apple,
my lips would blister and feel a bit itchy.
First it was apples, then it was strawberries,
then it was tomatoes.
So l went see my doctor, and be sent to allergic
and they said it was oral-allergy syndrome.
So I carry epinephrine,
just in case cause it’s in ever since like risk of huge reaction.
And then, about six months after that
I was just out one day with friends
and then I hadn’t eat anything new and drink anything new
and I suddenly felt really unwell.
The next thing I know,
I’m being injected with things
and they’re putting oxygen masks on my face and then I lost consciousness
And they told me I’ve had a life-threatening anaphylactic reaction
They said it was probably a fluke thing,
this sometimes happens,
don’t worry about it too much.
You’ve got EpiPens if you do again.
Since my very first anaphylactic reaction,
I’ve used over 250 EpiPens.
The cells in my body called mast cells
are responsible for releasing things such as histamines.
In my body, the cells react inappropriately,
so if there is an attack, it releases chemicals,
but it releases too many,
or sometimes it releases chemicals when there’s no trigger at all,
so I have completely spontaneous reactions.
Reactions can vary.
They can be anything from just feeling under the weather
– itchy,very tired – or they can be life-threatening,
like tongue and throat swelling.
I have pictures from reactions because I don’t really remember them very well.
So, it helps piece things together for me.
So, this was my very first intensive care admission in 2014,
when I’d ended up being transferred to ICU for the first time.
And it seems really strange, looking at myself with hair now,
because I am so used to not having hair.
I just kind of have to make the bald-girl look work, really.
I don’t have much choice.
The mast activation syndrome is an incredibly difficult condition to live with
and it can be very hard to cope with.
Pretty much anything can impact this condition,
and sometimes, my body is OK with it,
and other times, it has a complete meltdown over the slightest things.
I’m not able to do most things most 22-year-olds do,
I can’t drink alcohol, I can’t even tolerate it on my skin.
We tend to only cook things that she’s safe with.
It limits the food that my husband and I have.
Obviously, try and clean as much as possible
to reduce the pollen in the house.
I think mainly using antibacterial wipes and sprays,
making sure all surfaces are cleaned down,
especially with having the dogs, as well.
When Natasha’s in hospital and she’s had a severe reaction,
it’s very distressing to see her,
but I don’t want her to see my distress or upset
because I don’t want her to feel worried about me.
You want to walk away and not experience it.
But obviously you have to stay.
Um, it is distressing.
I’ve done gymnastics since the age of eight, just recreationally.
从八岁起 为了消遣 我开始做体操
When I developed this condition,
I wasn’t able to keep up with mainstream gymnastics.
Switching to disability allows me to compete,
and I can train at my own rate rather than push myself.
I think what I admire most about Natasha is her positivity.
I think it’s her personality that gets her through everything,
because she’s just a really bubbly personality and really positive.
In the gym, there are quite a lot of barriers
because other girls wear aerosol body sprays, and there’s chalk,
and there can be dust around.
When I exercise,
because of the way the mast cells affect my brain,
I lose the feeling
from my elbows down and my knees down.
So when I’m stood on a beam,
I can’t feel where my feet are.
I can only look at the beam to know where they are.
But I’m quite persistent and I’m quite stubborn
and I love gymnastics so much.
And I think because I have that passion,
that’s what gets me through the tough days –
to then be able to go out
and compete and show people
that disabled people can actually do things!
I admire her determination
and her ability to laugh about everything,
no matter how serious it is.
I really don’t know where she gets her strength from.
But, I think she’d like to inspire people if she can,
但是我觉得 如果可以 她想去激励人们
to say to them,”You can achieve things if you try.”
These are the British medals,
and then, when I get a gold, I also get a trophy.
That’s the UK Number One trophy,
which I’ve won for the last three years.
And this is my Pride of Sport trophy.
In 2015, I was named the Disabled Sportsperson of the Year,
which just feels amazing
to be recognised as a disabled athlete nationally, not just locally.
I’ve always supported Tasha doing her gymnastics
because it’s something she’s always loved and been passionate about.
People always ask me,”How does it work if you’re a gymnast
“that’s allergic to exercise?”
I think that’s kind of the point –
it doesn’t really work,
which is why it’s so difficult to train and work around it.
It’s a huge barrier,
but with the support of my friends, family and coaches,
we work through it as best we can.
I mean, I’m never going to be the world’s greatest gymnast,
but as long as I enjoy it and I can keep doing what I’m doing,
then I’m happy.
I’m allergic to my hair growing,