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用简单的方法解决帕金森综合征的问题

Simple hacks for life with Parkinson's | Mileha Soneji

印度有很多大家族
In India, we have these huge families.
相信大家有所耳闻
I bet a lot of you allmust have heard about it.
大家族就有很多大型家族活动
Which means that there area lot of family events.
我小的时候常被父母拖过去参加
So as a child, my parentsused to drag me to these family events.
但我唯一想做的就是
But the one thingthat I always looked forward to
找我亲戚玩
was playing around with my cousins.
以前那里
And there was always this one uncle
总有一个叔叔
who used to be there,
经常做好了准备和我们一起跳
always ready, jumping around with us,
陪我们玩
having games for us,
陪我们度过了快乐的时光
making us kids have the time of our lives.
这个人及其的成功
This man was extremely successful:
自信 有能力
he was confident and powerful.
但是随后这个健壮精神的人生了病
But then I saw this hale and hearty persondeteriorate in health.
被诊断为帕金森综合征
He was diagnosed with Parkinson’s.
帕金森综合征会引发神经系统退化
Parkinson’s is a disease that causesdegeneration of the nervous system,
意味着一个过去独立的人
which means that this personwho used to be independent
突然因为颤抖 连喝咖啡都变得非常困难
suddenly finds tasks like drinking coffee,because of tremors, much more difficult.
我的叔叔开始使用拐杖行走
My uncle started using a walker to walk,
想要拐弯
and to take a turn,
就必须像这样一点一点地走
he literally had to takeone step at a time, like this,
要花很久的时间
and it took forever.
所以一个以前每次家庭聚会上
So this person, who used to bethe center of attention
都成为焦点的男人
in every family gathering,
突然间躲在人们后面
was suddenly hiding behind people.
他在躲避大家怜悯的目光
He was hiding from the pitiful lookin people’s eyes.
他并不孤单
And he’s not the only one in the world.
每年60000人被新诊断为帕金森综合征
Every year, 60,000 peopleare newly diagnosed with Parkinson’s,
而且以后会更多
and this number is only rising.
作为设计者 我们希望我们的设计可以解决这些复杂的问题
As designers, we dream that our designssolve these multifaceted problems,
一个方法就能一劳永逸
one solution that solves it all,
但往往事与愿违
but it need not always be like that.
你也可以通过解决一系列小问题
You can also target simple problems
最终产生重大的影响
and create small solutions for themand eventually make a big impact.
所以我的重点不是治愈帕金森综合征
So my aim here wasto not cure Parkinson’s,
而是让病人每天更轻松
but to make their everyday tasksmuch more simple,
之后形成一个作用
and then make an impact.
那么第一个要解决的问题就是颤抖 对吧?
Well, the first thing I targetedwas tremors, right?
叔叔告诉我他为了防止引起尴尬
My uncle told me that he had stoppeddrinking coffee or tea in public
已经不在公共场合喝咖啡或者茶了
just out of embarrassment,
所以我设计了防洒杯
so, well, I designed the no-spill cup.
通过设计一个样式达到目的
It works just purely on its form.
每次使用者颤抖时 顶部的曲线可以让液体流回杯子
The curve on top deflects the liquidback inside every time they have tremors,
从而达到不会洒的目的
and this keeps the liquid insidecompared to a normal cup.
更关键的是它不会被贴上帕金森综合征患者产品的标签
But the key here is that it is not taggedas a Parkinson’s patient product.
它就像一个你 我 每个笨手笨脚的人都会使用的杯子
It looks like a cup that could be usedby you, me, any clumsy person,
对于他们来说 这样使用可以更加舒适 更加和谐
and that makes it much more comfortingfor them to use, to blend in.
所以第一个问题解决了
So, well, one problem solved,
后面还有很多
many more to go.
这一阵我一直在采访他
All this while, I was interviewing him,
询问他
questioning him,
后来我发现我只得到了很表面的信息
and then I realized that I was gettingvery superficial information,
或只是简单地回答我问的问题
or just answers to my questions.
但我真的需要再深入一点 看能不能理出新的头绪
But I really needed to dig deeperto get a new perspective.
我想从观察他的日常生活开始
So I thought, well,let’s observe him in his daily tasks,
观察他吃饭和看电视
while he’s eating, while he’s watching TV.
当我看到他走去餐桌吃饭的时候
And then, when I was actuallyobserving him walking to his dining table,
我震惊地发现 他就连在平地上行走都是很困难的
it struck me, this man who finds itso difficult to walk on flat land,
更何况去爬楼梯
how does he climb a staircase?
在印度没有像其他发达国家一样
Because in India we do not havea fancy rail that takes you up a staircase
电梯可以帮你上楼
like in the developed countries.
大家都要爬楼梯
One actually has to climb the stairs.
他跟我说
So he told me,
我给你看我怎么上楼
“Well, let me show you how I do it.”
请看我所看到的情况
Let’s take a look at what I saw.
他花了很长的时间走到了这个位置
So he took really longto reach this position,
这段时间我一直在想
and then all this while, I’m thinking,
”天啊 他真的要这么做么?
“Oh my God, is he really going to do it?
他真的要不用拐杖走楼梯么?”
Is he really, really going to do itwithout his walker?”
然后……
And then …
(笑声)
(Laughter)
然后他很轻松的转弯
And the turns, he took them so easily.
所以 震惊了么?
So — shocked?
我也震惊了
Well, I was too.
一个不能在平地上走路的人
So this person who could notwalk on flat land
爬楼梯却非常顺利
was suddenly a pro at climbing stairs.
通过研究,我了解到这是因为爬楼梯是一系列的动作
On researching this, I realized thatit’s because it’s a continuous motion.
另一个同样使用拐杖的
There’s this other manwho also suffers from the same symptoms
帕金森综合征患者
and uses a walker,
只要骑上自行车
but the moment he’s put on a cycle,
所有的症状都消失了
all his symptoms vanish,
也是因为这是连续性的动作
because it is a continuous motion.
所以问题的关键就是我如何把爬楼梯的感觉
So the key for me was to translatethis feeling of walking on a staircase
移植到平地上去
back to flat land.
我在他的身上尝试了很多想法
And a lot of ideaswere tested and tried on him,
我们看一下最终成功的想法
but the one that finally workedwas this one. Let’s take a look.
(笑声)
(Laughter)
(掌声)
(Applause)
他走得快一点了,是吧?
He walked faster, right?
(掌声)
(Applause)
我把它称为阶梯假象
I call this the staircase illusion,
实际上 当阶梯假象突然结束了他就会停住了
and actually when the staircase illusionabruptly ended, he froze,
这叫做步态冻结
and this is called freezing of gait.
这经常发生
So it happens a lot,
那为什么不让屋子充满阶梯假象
so why not have a staircase illusionflowing through all their rooms,
使他们更加自信
making them feel much more confident?
科技并不是一切
You know, technology is not always it.
我们需要以人为本的解决方案
What we need are human-centered solutions.
我本可以在谷歌眼镜或者
I could have easilymade it into a projection,
别的什么上做一个阶梯的投影
or a Google Glass, or something like that.
但是我坚持只把它画在地上
But I stuck to simple print on the floor.
医院可以采用这个印花
This print could be taken into hospitals
让病人觉得更自在
to make them feel much more welcome.
我想做到让所有的帕金森综合征的病人
What I wish to dois make every Parkinson’s patient
都感受到我叔叔那天的感觉
feel like my uncle felt that day.
他告诉我我让他重新找到了他从前的自信
He told me that I made him feellike his old self again.
“智能” 现在和高科技已经变成了同义词
“Smart” in today’s worldhas become synonymous to high tech,
世界每一天都变得更加智能
and the world is only gettingsmarter and smarter day by day.
但是为什么智能的东西不能是简单而且有效的呢?
But why can’t smart be somethingthat’s simple and yet effective?
我们需要的只是同理心和好奇心
All we need is a little bit of empathyand some curiosity,
到现场观察
to go out there, observe.
但我们不要固步不前
But let’s not stop at that.
让我们解决一些复杂的问题而不是被它吓到
Let’s find these complex problems.Don’t be scared of them.
各个击破,把大问题打碎成一个个小问题
Break them, boil them downinto much smaller problems,
再找到小问题的答案
and then find simple solutions for them.
尝试找到答案 如果失败了
Test these solutions, fail if needed,
就用新的视角尝试更好的办法
but with newer insights to make it better.
想象如果我们可以想到简单的解决方案我们能做得多好
Imagine what we all could doif we all came up with simple solutions.
如果我们把简单的方案连在一起这个世界将会如何?
What would the world be likeif we combined all our simple solutions?
让我们使用简单的方式 让世界更智能
Let’s make a smarter world,but with simplicity.
谢谢
Thank you.
(掌声)
(Applause)

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视频概述

使用科技 而不是医疗 从新的视角对于帕金森综合症进行理解

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视频来源

https://www.youtube.com/watch?v=Gg5M3J_FHXY

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